Over 1,000 people donate Rs 20 lakh for 11-month-old baby in one week on ImpactGuru; Details

by Joseph K. Clark

Ayah is currently admitted at AIIMS, Delhi. (Representational image). Crowdfunding via ImpactGuru: More than 1,000 people have contributed more than Rs 20 lakh in a week to help an 11-month-old baby! An employee of TCS has taken to donation-based crowdfunding platform ImpactGuru to raise Rs 16 crore for his 11-month-old son. The latter has been diagnosed with Spinal Muscular Atrophy (SMA) Type 1. The money collected would go towards the treatment of the baby named Ayansh Madan, who would require a one-time gene replacement therapy called Zolgensma.

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The employee took to the platform nearly two months after Rs 4 crore was collected to treat a 4-month-old baby named Teera, who also suffered from the same rare disease and needed Zolgensma therapy. In his post seeking a donation, he requested people to help his son like they helped Teera.

SMA is a genetic disease, which is rare in nature. It affects the child’s nerves and muscles, rendering them unable to carry out even the most basic daily activities like sitting up, swallowing their milk, and even breathing. Affecting one in every 10,000 children, SMA is also the leading genetic cause of death worldwide.

Zolgensma therapy is the only potential cure for children with SMA, and it is not available in India, forcing parents to import it from the US at steep costs. His father said that Ayah is currently admitted at AIIMS, Delhi, and his Zolgensma therapy would cost $2.1 million (Rs 16 crore).

Hoping for a positive response from donors towards the Madan family, ImpactGuru Co-Founder and COO Khushboo Jain updated the crowdfunding campaign for baby Teera, saying that the platform helped Teera’s family collect Rs 14.92 crore. It was this success that urged the Madan family to seek help on the forum, Jain said.

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